Additional SupportAdditional SupportAdditional Support

Additional Support

Kristina, living with LEMS

Catalyst Patient Support Opportunities

Catalyst Pharmaceuticals sponsors several programs and services where patients living with Lambert-Eaton myasthenic syndrome (LEMS) can find support, fellowship, and guidance.

People talking over coffee

Coffee Breaks are regional education events, hosted by a Patient Access Liaison (PAL), where patients with LEMS and caregivers can learn about different topics relevant to their disease. Coffee Breaks are held live whenever possible or via a Zoom call when necessary. It’s also a great way to connect with other patients in an informal setting.Copy linkCopied!

Contact your PAL for more information.

Woman talking over laptop

Our Patient Ambassador Program enables patients to participate in live local events and live webcasts with LEMS ambassadors, who share their stories about facing and overcoming the challenges of living with LEMS. Patients can interact with one another and receive additional information on topics pertinent to the LEMS patient community.Copy linkCopied!

For more information, call 1-855-697-3961 or visit www.RealLifeWithLEMS.com.

Woman talking over laptop

LEMS Connection is a mentoring program that enables patients who have been diagnosed with LEMS to talk with other LEMS patients about their personal experiences.Copy linkCopied!

To get connected to a mentor, call 1-833-492-8853 or visit www.LEMSConnection.com.


National Organizations That Offer Support

There are several organizations that support people living with rare diseases, including:

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National Organization for Rare Disorders (NORD) is an organization committed to the identification, treatment, and cure of rare disorders through educational programs, advocacy, research, and patient services.

rarediseases.org »

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Global Genes is a rare disease patient advocacy organization that works to build awareness, educate the global community, and provide connections and resources.

globalgenes.org »

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NIH Genetic and Rare Diseases (GARD) Information Center provides access to current, reliable, and easy-to-understand information about rare or genetic diseases.

rarediseases.info.nih.gov »

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The Myasthenia Gravis Foundation of America (MGFA) is committed to finding a cure for myasthenia gravis (MG) and closely related disorders, improving treatment options, and providing information and support to people with MG through research, education, community programs, and advocacy.

myasthenia.org »

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The Muscular Dystrophy Association (MDA) is an organization started by a concerned group of caring families. Since 1950, the MDA has relentlessly pursued their promise to free families from the life-threatening effects of muscular dystrophy and muscle-debilitating diseases.

mda.org »

Get Started

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Enroll now to start getting one-on-one support. Talk to your doctor and complete the Catalyst Pathways™ Enrollment Form together.