Patient Support Organizations

Kristina, living with LEMS

Other Sources of Support

There are several organizations that support people living with rare diseases, including:

National Organization for Rare Disorders (NORD) is an organization committed to the identification, treatment, and cure of rare disorders through educational programs, advocacy, research, and patient services.

rarediseases.org »

Global Genes is a rare disease patient advocacy organization that works to build awareness, educate the global community, and provide connections and resources.

globalgenes.org »

NIH Genetic and Rare Diseases (GARD) Information Center provides access to current, reliable, and easy-to-understand information about genetic and rare diseases.

rarediseases.info.nih.gov »

Living with LEMS is a site for all patients with Lambert-Eaton myasthenic syndrome (LEMS) and their caregivers and family members. The goals of this site are to build connections and offer resources and support to help people with LEMS become informed advocates.

LivingWithLEMS.org »

The Myasthenia Gravis Foundation of America (MGFA) is committed to finding a cure for myasthenia gravis (MG) and closely related disorders, improving treatment options, and providing information and support to people with MG through research, education, community programs, and advocacy.

myasthenia.org »

Get Started

Enroll now to start getting one-on-one support. Talk to your doctor and complete the Catalyst Pathways Enrollment Form together.